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Consumer Health Data Privacy Policy

Last updated at: 10/16/2026

This Consumer Health Data Privacy Policy ("Policy") describes how MOTA Care Corporation ("MOTA," "we," "us," or "our") collects, uses, shares, and protects health-related and genetic information when you use our website, mobile application, and related services (collectively, the "Services"). This Policy supplements MOTA's general Privacy Policy, and specifically addresses the categories of information that receive special protection as consumer health data and genetic data under California, Washington, Connecticut, Nevada, and other applicable state laws.
If anything in this Policy conflicts with MOTA's general Privacy Policy as it relates to health or genetic information, this Policy controls.

1. What This Policy Covers

This Policy applies to information that identifies, or could reasonably be used to identify, your past, present, or future health status, and to information about your genetic makeup — including the information you provide when you set up your MOTA profile and when you use features like your personalized action plan, the HRT Companion, and Community Stories.
This Policy applies to you no matter which U.S. state you live in.

2. The Health and Genetic Information We Collect

Depending on how you use MOTA, we may collect the following categories of information directly from you:
  • Genetic testing status and mutation type (for example, whether you have tested positive for a BRCA1 or BRCA2 mutation)
  • Whether you have seen a genetic counselor and how long ago you learned your genetic test result
  • Personal and family cancer history
  • Age
  • Sex assigned at birth and reproductive or family-planning information
  • Menopause-related information
  • Surgical history or status related to your care journey
  • Health and genetic information you write in Community Stories, including your answers to the Story Guide, your drafts, and stories you submit for publication
  • Information about how you use the Services, such as the pages you view, which may show that you are seeking information about hereditary cancer risk
We collect this information only when you provide it to us or use the Services — for example, when you set up your profile, answer questions to generate your personalized action plan, use the HRT Companion, or write in Community Stories.

3. How We Use This Information

We use the information described above to:
  • Generate your personalized, NCCN-guideline-based action plan
  • Power optional features like the HRT Companion and the Story Guide
  • Help you write and, if you choose, publish a Community Story
  • Provide the other core functions of the Services you request
  • Understand how the Services are used so we can improve them
We do not use your health or genetic information for advertising or marketing, and we do not use it to train artificial intelligence models.

4. When and With Whom We Share This Information

We do not sell your health or genetic information.
We share this information only in limited circumstances, and only for the purposes described in this Policy:
  • HRT Companion. If you choose to use the HRT Companion, only certain profile fields — genetic mutation type, age, surgical history, menopause status, and personal/family cancer history — are sent to Anthropic, our AI service provider, solely to generate your responses within that feature. This is explained on the HRT Companion screen, and using the feature is optional.
  • Story Guide and polishing. If you use the Story Guide or the polishing feature in Community Stories, your answers or the text you ask us to polish are sent to Anthropic, our AI service provider, solely to draft or polish your story. If you choose to let the Story Guide use your profile, the profile details shown to you at that time are also sent. These may include genetic mutation type, age, family-planning information, personal and family cancer history, surgical history, menopause status, whether you have seen a genetic counselor, and how long ago you learned your result.
  • The public, when you choose. If you give permission to publish a Community Story and we approve it, the health and genetic information in your story becomes public on mota.care, where anyone can read, copy, or share it and search engines can find it. You give this permission each time you submit a story, and you can take a story down at any time, as described in our Community Stories Terms.
  • Service providers. We may share information with vendors who help us operate MOTA, such as providers of hosting, analytics, email delivery, and artificial intelligence services, under contracts that require them to protect your information and use it only to provide services to us.
  • Legal requirements. We may disclose information if required by law, such as in response to a valid subpoena or court order.
We do not share your health or genetic information with employers, insurers, or data brokers. We do not allow third parties to collect your consumer health data over time and across other websites or online services when you use MOTA.

5. Your Genetic Information

Because genetic information deserves extra care, we handle it with additional protections:
  • We give you control over your genetic mutation status, including how it is used and whether it is shared with a third party to provide the Services you request.
  • You may withdraw this permission at any time. Withdrawing is just as easy as giving it.
  • You may ask us to delete your genetic information at any time. Because we do not collect a biological sample, there is no separate sample to destroy.
  • We will not use your genetic information for marketing, or share it with anyone for research purposes, without asking you first.
  • If a Community Story you submit includes genetic information, we publish it only with the permission you give when you submit that story.

6. Your Rights

You have the right to:
  • Access the health and genetic information we have about you
  • Correct inaccurate information
  • Delete your information
  • Withdraw any permission you've given us for a specific use
  • Appeal a decision if we deny a request you've made under this Policy
To exercise any of these rights, contact us at hello@mota.care. If we deny your request, you may appeal by replying to our decision, and we will respond to your appeal within 45 days.
If you ask us to delete information that appears in a published Community Story, we take the story down. We cannot delete copies that others have already saved.
We will not discriminate against you, or provide you with a lower level of service, because you exercised any of these rights.

7. How Long We Keep This Information

We retain your health and genetic information for as long as your account is active, or as needed to provide the Services. If you delete your account, we will delete this information, except where we are required to retain it by law. Community Stories drafts are deleted 12 months after you last work on them, and published stories are kept until they are taken down. Copies in our backup systems are deleted within six months.

8. Keeping This Information Secure

We use administrative, technical, and physical safeguards designed to protect your health and genetic information. If we ever experience a security incident affecting this information that requires notice under applicable law, we will notify affected users, and any government agencies required by law, consistent with our legal obligations.

9. Changes to This Policy

We may update this Policy from time to time. If we make material changes, we will notify you before those changes take effect by email or by a notice in the Services.

10. Contact Us

If you have questions about this Policy or how MOTA handles your health or genetic information, contact us at hello@mota.care.